A Newtowncunningham couple who lost their eighteen day old baby to a condition so rare there have only been seventy reported cases worldwide, have launched a major fund-raising initiative IN appreciation to Our Lady’s Childrens’ Hospital in Crumlin for the care their daughter, Megan Jessica, received.
As debate continues on the refusal of planning permission for the proposed national paediatric hospital on the Mater Hospital site in Dublin, the couple, Gillian Devenney and Johnny Moore, spoke this week of the “truly amazing and supportive” care from the team in the Paediatric Intensive Care in Crumlin where their daughter was brought shortly after her birth on September 27th last.
Little Megan passed away on October 14th after an intensive series of tests and treatment following her diagnosis of the rare condition, Chromosome Ring 18.
Announcing details of events to be held in June next, her parents said: “Heart-breaking and painful as it is of the tragic loss of our little baby daughter Megan, we have decided to embark on this fund-raising initiative as a token of appreciation for the ongoing work at the hospital.”
READ THE FULL STORY IN TODAY’S DONEGAL DEMOCRAT AND DONEGAL PEOPLE’S PRESS.