The group “Our Children’s Voice” are to meet tomorrow, May 1st, with senior HSE staff in what parents hope will indicate a move toward better access to respite and other services for Donegal children.
The parents of “Our Children’s Voice” are lobbying for better access to services for Donegal children with life-limiting conditions or high medical and physical needs. Mothers in the group met with Health Minister Leo Varadkar in February.
Gina Grant of “Our Children’s Voice” said the group hoped that in the near future there would be funding to allow Donegal children to access respite services in Belfast. The mothers asked Minister Varadkar to lift existing restriction, to allow paediatric consultants at Letterkenny General Hospital to refer children to the Belfast hospice. Donegal families must now travel to Dublin for paediatric hospice.
The mothers have also asked the minister to appoint an acting-up post of palliative outreach nurse in Letterkenny while interviews for the sanctioned post are taking place.
“Even though we’re nervous and unaware of what to expect from the meeting, we are hoping it’s a positive step for the children of Donegal,” Gina said. “We hope it’s the start of where we work with the HSE and together we get things that are so badly needed.”P